I hope you are all well and pain free and had a wonderful start to 2013.
Tristan and I have made it to London, safe and sound and happily living in Sutton, SURREY.
I am looking forward to discovering the English EDS Support Groups and hopefully meeting people with EDS. The UK Support Group website is: http://www.ehlers-danlos.org. I hope to make contact with people who can share with me how they are living with EDS and the kind of support that they are getting from the UK Support Groups.
I'll let you know!!!
Love Rowena and Tristan