I hope you are all well and pain free. I just wanted to share the amazing photos of my boys new chest. Yesterday he had his last check up with his surgeon and here are the amazing results;
Before and After photos:
We spoke to his surgeon about that blatant researcher saying that it sounds like Tristan has Marfans Syndrome, and he said, "Most of the children I see who have Pectus Excavatum do not have Marfans". That truly put my heart at ease. I have not been at all worried about the possibility, as I know Tristan won't have it. Highlighted are the only characteristics that Tristan has to Marfans:
Marfan Syndrome Characteristics:
- Lung tissue (there may be a pneumothorax, in which air can escape from the lung into the chest cavity and collapse the lung)
- The aorta, the main blood vessel that takes blood from the heart to the body may stretch or become weak (called aortic dilation or aortic aneurysm)
- The eyes, causing cataracts and other problems (such as a dislocation of the lenses)
- The skin
- Tissue covering the spinal cord
- A chest that sinks in or sticks out -- funnel chest (pectus excavatum) or pigeon breast (pectus carinatum)
- Flat feet
- Highly arched palate and crowded teeth
- Hypotonia
- Joints that are too flexible (but the elbows may be less flexible)
- Learning disability
- Movement of the lens of the eye from its normal position (dislocation)
- Nearsightedness
- Small lower jaw (micrognathia)
- Spine that curves to one side (scoliosis)
- Thin, narrow face
'Positive thinking is the only way forward and the only way to create a better future'.
By Rowena Lee Brewer
Love Rowena XXXX
P.S: I had the permission from my son to put these photos on. He wanted to share his transformation and is very proud of his new chest.
