Hi Everyone,
I hope you are well and pain free. I just wanted to post and let you know that my Tristan does not have Marfan Syndrome. YAY!!!!!!!!!!!!!!!!!!!!!!
He had his Genetic Counselling appointment today and he only have 5 of many characteristics of Marfan's. Because his eyes are okay and his heart is in tip top shape, his skeletal deformities no longer count toward the Marfan Syndrome characteristic.
He no longer has to have any more hospital appointments, no more genetic tests and no more WORRY!!!!
Love From Rowena XXXXXXXXXXX
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